Another big disappointment today as I received a call telling me no chemo again this week.
Yesterday morning was spent seeing the liver specialist. After reviewing my records and examining me he declared that he see’s no evidence of liver disease (besides the cancer). It is his opinion that I may have Gilbert’s Syndrome which affects 6% of the population. Basically it’s a non-fatal genetic condition that causes a higher then normal bilirubin level. This was also my doctor’s opinion when I spoke to her last week. I had blood drawn to confirm this diagnosis. In the mean time because my level is higher then normal until this is confirmed or the level drops I cannot continue with the trial chemo.
To say I’m disappointed, stressed, mad, etc is putting it mildly. I now have not had chemo for 5 weeks which makes me worried that all the good it has done in the last 9 months is being reversed. For someone like me who takes the bull by the horns I feel helpless because there’s nothing I could do except wait.
Not much else to report and to be honest I’m so frustrated I don’t even feel like writing.
Until I know more….
Keep on Dancin’
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