Wednesday was my 19th chemo treatment with the trial drug T DM-1. Hard to believe it's been a year since I started the trial. As you may have seen from my last post this drug was finally approved for limited use (whatever that means) by the FDA after many years of testing and fighting. It's been good to me so far ( but as you all know I'm cautiously optimistic ) and I hope others will benefit from this drug. It's a good feeling to think that I am a "pioneer" (or guinea pig as I like to say) who's participation in this trial will help those in the future to fight this battle.
I saw the doctor before my treatment and she advised me that even thought this therapy has been approved, the drug company has chosen me to stay on trial and continue to gather information on my tolerance to it and any side effects as well as results. This is a good thing since the trial covers the cost of the chemo (rumor is that the cost is close to $10,000 per treatment) and testing (CT Scans, ECHO, etc). Although I have good insurance I would hate to think I would have to fight with BCBS for them to cover the cost of the treatments. So I continue my quest to make history....
All and all everything is good. Just very tired and constantly cold.
Thanks for all your support!
Keep on Dancin'
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