Just when you think it was safe to let your guard down something comes and hits you between the eyes like an icy snowball on a cold bitter day.
After getting a very positive report from the Neurology Oncologist who (and I quote) said “this is a good report, you’re practically perfect” I get a call Monday morning from my Oncologist (a week and a half later after getting this news) who tells me they (the tumor board that consists of a Neurology Oncologist, Radiation Oncologist, Surgeon, Pathologist, etc) reevaluated my brain MRI and now they feel that one of the tumors is in the brain. I need to go see the Radiation Oncologist for evaluation. Of course it’s taking over a week to get in to see him even with my Oncologist making the appointment. This is going on for almost 2 months and I see no sense of urgency which is frustrating. In the mean time I have something on my brain that doesn’t belong there.
Not only does this news bring more visits to the hospital and probably radiation treatments, but will upset my chemo schedule since radiation + chemo = burning a hole in your brain (like I need anymore). My doctor is talking about putting me on another study with another chemo but I have strong feelings that if the chemo I’m on has been working why change now. Hopefully the radiation will destroy the brain tumor (without destroying anything else up there) and I could go back and resume the same chemo.
I have an appointment for next Wednesday morning with the Radiation Oncologist so after that meeting I’ll know more and what my options are with treatments.
I’ll update you more after my appointment next week.
Keep on Dancin”
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