It’s amazing how fast things could change in four weeks. I went from the brain tumors being stable and not attached to the brain to last weeks phone call saying one of the two was now believed to be attached to the brain to yesterday’s appointment with the Radiation Oncologist telling me I now had four tumors which are growing in the brain. The verdict is full brain radiation everyday for three weeks.
What is most maddening about this whole scenario is waffling back and forth to the lack of sense of urgency. This has been going on for two months now and it will probably take another 2-3 weeks before I even start radiation. Next week I go in for a CT Simulation which is where they position you on the table and do a scan so they can make sure that they only radiate the brain area and no other areas (eyes, mouth, etc). They then make a mask that forms to my head and is attached to the table to prevent any movement during the treatments. If you look back in my blog to three years ago I actually have pictures of me on the table wearing my mask.
No chemo while I’m having the radiation which shouldn’t be a problem since I have it every three weeks anyway.
Of course they have to give you the whole disclaimer of side effects – memory loss, hair loss and burns being the main ones. One slip and they can turn you into a veggie. Of course I’d like to be a green bean – tall and skinny although green isn’t my favorite color.
I’ll keep you updated as this new adventure begins.
Keep on Dancin’
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